Hello to my blog!

My name is Caroline, I’m 39 years old and have decided to start this blog about my life living with a genetic condition called Noonan’s syndrome.

Noonan’s syndrome affects 1 in 2500 births within the u.k but it isn’t a wildly known condition, (out of the many doctors I’ve seen only about 3 have actually heard of it)

One of the reasons I have started this blog is to try to get Noonan’s syndrome noticed!

I’ve lived with Noonan’s syndrome all my life and haven’t known anything different. It’s affects me every day from the moment I get up to the moment I close my eyes on a nightime.

It’s affects me in manys ways, inculding heart defects and a number of other health problems.